It's been awhile since I've posted anything. I must admit this recent treatment took a bit out of me. First, it's a new set of drugs, then there are the steroids that they ask me to take to better tolerate the drugs and to minimize reactions. The steroids really hyped me up (see last blog entry), but with chemo drugs that are supposed to fatigue more than the last set, well, it was inevitable that I would crash and it is only now that I seem to be picking myself up to have enough energy for things beyond the basics needed for living my day to day life with my little guy.
I have made time for myself, despite the fatigue. I am dedicated to the idea of tranformation, especially around the emotionally difficult. This time of year is difficult for me as it is my wedding anniversay (June 17 would have been 5 years), Father's Day and my son's birthday (bittersweet as I love celebrating with my son but it always seems so evident that his dad is not here). Back to transformation, two years ago with my first wedding anniversay without Al, I was still quite numb and in a very difficult spot. Through a variety of limitations of people's schedules, I ended up negotiating my leave of absence with my workplace on this day. I had my very close childhood friend come and help with this process.
After sorting out my leave of absence, needing to relax and celebrate that the negotiation was done, we went to a nice restaurant to eat. We found we cried, we talked about Al and what wonderful things he taught us and what an amazing husband and dad he was. We drank wine and ordered food "that Al would approve of." Al and I really connected over food, some would call us foodies and we really enjoyed variety and quality of food (both that we would cook ourselves and that which is made for us). Since, June 17 has become a day to go out with this friend (and her husband this year) and have "food Al would approve of". Sorta a celebration of life and love and great food. This year we went to a restaurant that focuses on farm fresh meats and produce (pretty much all organic, free range, grass fed, etc), only cooking what is in season and what they procure from the farmers they work with. We shared a wonderful cheese platter, I had pork done two ways on wilted kale with a purple potato latke, and we shared a coffeecake (baked in a jam jar) with a espresso creme anglais. Thoroughly enjoyable, making my taste buds dance (despite the horrible mouth sores that developed at the top of my throat). I was determined I was going to enjoy the dinner as really, the date is inescapable and tears and missing feelings tend to predominate. So I roll with it and try and find some things to look forward to and make the day different, something to celebrate rather than mourn.
Father's Day and hopefully my son's birthday, have become big family gatherings. I do work with my son and ask what he wants to do for Father's Day. He wanted to draw pictures to put at his dad's gravesite. So that's what we do. After we had an outing with my folks and then spent the evening with my husband's family & my folks having a big Italian meal that my mom-in-law likes to do for celebrations. My son's birthday celebration with family will be another big gathering, only at my home with everyone being recruited to help with set up/ clean up/ food. There is something about being near family (or friends), enjoying each others' company and cheer that allows for these difficult days be a little less difficult.
I have made time for myself, despite the fatigue. I am dedicated to the idea of tranformation, especially around the emotionally difficult. This time of year is difficult for me as it is my wedding anniversay (June 17 would have been 5 years), Father's Day and my son's birthday (bittersweet as I love celebrating with my son but it always seems so evident that his dad is not here). Back to transformation, two years ago with my first wedding anniversay without Al, I was still quite numb and in a very difficult spot. Through a variety of limitations of people's schedules, I ended up negotiating my leave of absence with my workplace on this day. I had my very close childhood friend come and help with this process.
After sorting out my leave of absence, needing to relax and celebrate that the negotiation was done, we went to a nice restaurant to eat. We found we cried, we talked about Al and what wonderful things he taught us and what an amazing husband and dad he was. We drank wine and ordered food "that Al would approve of." Al and I really connected over food, some would call us foodies and we really enjoyed variety and quality of food (both that we would cook ourselves and that which is made for us). Since, June 17 has become a day to go out with this friend (and her husband this year) and have "food Al would approve of". Sorta a celebration of life and love and great food. This year we went to a restaurant that focuses on farm fresh meats and produce (pretty much all organic, free range, grass fed, etc), only cooking what is in season and what they procure from the farmers they work with. We shared a wonderful cheese platter, I had pork done two ways on wilted kale with a purple potato latke, and we shared a coffeecake (baked in a jam jar) with a espresso creme anglais. Thoroughly enjoyable, making my taste buds dance (despite the horrible mouth sores that developed at the top of my throat). I was determined I was going to enjoy the dinner as really, the date is inescapable and tears and missing feelings tend to predominate. So I roll with it and try and find some things to look forward to and make the day different, something to celebrate rather than mourn.
Father's Day and hopefully my son's birthday, have become big family gatherings. I do work with my son and ask what he wants to do for Father's Day. He wanted to draw pictures to put at his dad's gravesite. So that's what we do. After we had an outing with my folks and then spent the evening with my husband's family & my folks having a big Italian meal that my mom-in-law likes to do for celebrations. My son's birthday celebration with family will be another big gathering, only at my home with everyone being recruited to help with set up/ clean up/ food. There is something about being near family (or friends), enjoying each others' company and cheer that allows for these difficult days be a little less difficult.